More on the brain and some break-throughs!

What a whirlwind it’s been! 2019 has worn me out.

So, I’m putting all this “out there” so I can find out who my awesome resources and experienced mommas/daddies are, or maybe give another parent some hope or ideas. We have had major regression and aggression since the week of Christmas. 14 fits in 9 weeks to be exact. (This is a lot for *Little man.) So, naturally, I’m back into my reading and research.

PANDAS is something all parents should be aware of. I have recently read about it, thanks to another mom that “randomly” crossed my path a month ago. This could be a cause of aggression and more frequent fits along with obsessions. He had strep the same week aggression started…and it has continued weekly until we received some more information from a neurotherapy facility.

We had a brain scan at the Neurotherapy facility, 3 weeks ago, which is really insightful! Since those results, (which are all possibilities, not diagnoses) I have been intervening when necessary, as if he had a diagnosis of OCD and indecisiveness. With many students I have taught, choices were what kept them functioning in the classroom. *Little man gets even more frustrated when offered a choice, when he is succumbing to “caveman” brain. I was previously either giving him a choice, but not necessarily the thing he was fixated on, which causes him to escalate; or, we completely ignore him, also causing him to escalate.

Thankfully, with OCD in mind, I have begun to see his fits as a lack of control, versus him trying to manipulate or take control. I focus on helping him get whatever it is he is crying about. I used to steer clear of his obsession during fits, because my previous parenting focus was, “you can’t get what you want when you act like this,” and focused on setting boundaries with my kids. This new strategy is one that is really hard for me- kids who are capable of controlling their emotions, get what they want if they whine more, cry, or ask over and over. I experience kids who test these boundaries frequently in my classroom. But ultimately, most kids thrive on boundaries. *Little man is a different story.

I am now relying on the fact that he actually can not mentally let ‘whatever it is’ go. OCD comes in various forms taking on the form of sensory and/or mental repetitive thoughts too, which I didn’t know until I read more about it.

Along with the new linguistics during a tantrum, we are going to our 3rd consultation at a highly recommended therapist. He offers many different treatment options, including neurofeedback. I have called many facilities, therapists, and doctors who offer neuro/biofeedback, thanks to our therapist’s referral and leads from my new mommy friend. Updates will follow, but please comment with your experiences.

I have also discovered Hylands supplements at Sprouts, thanks to a friend at school. We began taking these daily for irritability each afternoon, the same week I found out about the possibility of OCD, and received more information about the neurological effects of Strep.

So here we are, and we will grow together and stronger; as this too, shall pass. I am bringing my sis-in-law to help me listen and make an informed decision of our plan to a healthy mind and body.

30 minutes

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Why does 30 minutes affect our lives exponentially around here and in so many strange ways? Can you relate?

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Here are some examples of time and its constant crazy mind games it plays on me these days:

Some fast forward scenarios: “Yay, I have 30 minutes!” is a joke, because it can go by like 5 minutes of time, if I somehow manage to be home alone. I find myself thinking of the 100 things I want to get done before the sweet sounds from my boys and chaos arrive. How do I decide on what to do? …go to the gym, organize, plan ahead, catch up, write, read, connect on Instagram, laundry, dishes, walk, run, even the decision wastes my quiet time! =)

“Load up, we have to go now!” Oftentimes, if we don’t leave with at least 30 minutes ahead of time, to travel 7 miles, we will be late during the sports and afterschool appointment hour in our crazy little suburb.

In the world of teaching, 30 minutes can seem like less than 10 when teaching a new concept or engaging students in hands-on activities.

30 minutes of exercise is waaaayy too short, when I’m relying on it for stress relief.

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Slow-mo scenarios: “How has it only been 5 minutes?” 30 minutes of make-believe play (super heroes vs. bad guys) with my littles has always felt like double-time to me.

Sometimes I get excited, “yay, we have 30 minutes!” Brian and I can make a pretty healthy, delicious dinner together in 30 minutes.

30 minutes can also make the flood of tears, screaming, and trying to help my child regain control feel like an eternity.

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After a *little man fit last month, *C$ intervened. It worked. It felt like a punch in the gut, and made me so excited and proud at the same time. It was past the 30 minute buffer for afterschool activity travel time. *Little man couldn’t find one of his little kid lacrosse game sticks that he wanted to bring and play with while big brothers were practicing. I was rushing to get round 1 of dinner for the big boys, pack *little man’s dinner, water bottles, and change out of work clothes. *Little man wanted me to help him look for his toy, but I suggested he grab another toy since we were almost out of time. Right before “go time” I suggested again he get another toy, he refused with tears; so, I suggested he bring the one stick and ball he found. I quickly pushed shoes on his feet, and he became louder with his cries. After we got in the car, he was in full blown tantrum. I looked back at him, very agitated and distracted, I sternly said, “no sir, you may not scream in the car,” while reversing up the driveway. I promptly had to slam on the breaks because a car was coming quickly up the hill past our driveway. I scolded him that crying loudly in the car was dangerous, explained the wreck that almost just happened and again said, “you need to stop so I can drive, safety.” He escalated. I put the car in park and brought him to the porch so he could have the rest of his fit, which consisted of stomping, screaming, and throwing shoes in my direction.

C$ noticed I was flustered, ignoring little brothers cries, and must have thought that if he didn’t try, we would be late to his practice. As soon as he reached to touch *little man’s back, and ask him if he wanted to borrow his real lacrosse equipment, the screaming stopped. He was able to nurture when I was feeling beat up. He could have chosen to be angry about being late, or that he was just screamed at, but he chose to nurture. ♡

The next fit came later that week, Brian was traveling, and C$ said, “mom, can I talk to him?”

You guys, this is huge.  I wish I could freeze time and remember exactly the way our big boy acted in these tense moments.

Kids of trauma can often have “terrible twos” tantrums due to stunted brain development in one of the five areas. Our fits have always started with two factors. He is tired and doesn’t get his way, or he is corrected and hungry. It starts with crying, we usually try to move him or the big boys away from each other. If we engage, he escalates. If we ignore, he escalates. We are trying different strategies with each fit, and documenting each one. We now have an official plan in place and accommodations for school. We are learning to trust and he is learning that his “caveman” brain fits have consequences. We have realized that very natural and relational consequences do work the best thus far. He has had so many transitions in life that he is not “attached” to things, but he is attached to people. He does not want to be alone, or go without attention. Our parenting class with @andystanley and @sandrastanley couldn’t have taken place at a more perfect time. Though relational consequences are exhausting, and we desire to take more away (more tangible items), we have focused consequences directly related to the crime of the relationship he hurt. Big brother relationships are what he cares about most, so we are able to use the fact that, “they won’t want to play with you when you act like ______.”

We are becoming very intentional with our time. Sometimes we don’t agree on the way to prioritize it, but we are recognizing this tough mind game that time is playing, and trying to decide how we want to and need to spend the time we have left with our kids before they leave our home.

Because of October chaos, I am behind posting a few drafts. So, I have to end with this update: please, knock on wood or say thankful prayers for healing and stability, this month, *little man has only had one fit at school and no fits at home.

Birth mom

After having a tantrum, which started because of several things, but ultimately he was not allowed to go over to a friend’s house with his brother.  These fits are only happening now when two or more factors affect his brain, and are spread about every other week.  (No “trauma” tantrums!)  Brian and I try to engage as little as possible when he is a “5,” or “red” as *little man refers to the top of the 5-point scale.  We stay nearby and I remind him that he is in control of his emotions and “when you stop we can ___________.”  Or “if you don’t stop, we can not ____________.”  Last night was the latter, so I set a crying timer.  He did not stop crying during that time, so I calmly told him that we couldn’t do what he wanted.  He was able to reason when I asked him a question this time, but was angry with me so each time I attempted to connect with him, he began to cry again.  I refreshed his memory that it was ok to be angry with me, but you still have to like me (respect me), and not react in a “level 5.”  We also do not discuss the fit until later that night or the next day when he is using his upstairs brain completely.  I have mentioned them before, but love, love, love this book and these authors:

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He finally reconnected with me after snuggling on the couch, a kiss on the head, after-bath lotion, and a show.  *C$ and Dad came in afterwards, and a little humor helped as well.  *C$ told *little man, “I know how you feel.”

Though it was Brian’s turn for bedtime, I decided I would accept *little man’s plea only because I wanted to talk to him about his emotions and his brain.  After two books, one of them three times, (just as if he has my genes- I did the same thing as a kid) we were able to talk about his fit.  I simply reminded him he was too little for playdates, and the reason is because sometimes, his emotions get out of control, just as they did tonight.  Some day he will be big enough and won’t cry as easily, especially at someone else’s home.

Afterwards, he brought up a memory of all three of his previous families (but referred to the moms).  He asked my feelings towards those families; wow, not what I expected, but think I answered pretty well without avoiding the question like I wanted to.

Then he followed my words with, “I miss her.”  (We call her by name; but he decided last night that it was hard to say her name.)  I clarified which mom and said, “That’s okay baby, you can miss her.”

He continued with the conversation, though I knew it was probably getting to be a lot for him for one night.

Then he asked, “when can you be my birth mom?”

Wow, um, even harder, how do I answer this?  “I can never be your birth mom, but will be your forever mom.  I love that she brought you into this world, so Dad and I can have another son.”

He replied with a few more questions, and told me someone else that he missed (that I had never heard of).  He also tried to bring up an additional person from his birth family, but he actually began to get physically hot.  I turned on his fan, and quickly changed the subject to his Braves Blooper stuffed animal.  I did not want shun his feelings or the conversation, but we talk a lot and I knew this conversation would be more productive another night.

After some light conversation about his favorite thing we did at the lake, he brought up his fit again and said it was his “worst thing of the day.”

He told me his bones were shaking and his heart hurt.  While it broke my heart, I’m so proud of those words, but I wanted to equate those words to feelings, and again try to get his little brain ready for sleep.

Cue, pour a glass of wine and try to remember the evening so I can be better prepared for the next time.

Love you *little man,

your forever mom